Dear Family and Friends,
I can't even begin to write this email with a dry eye, but I know that there are many of you who care and want to know.
After a CT scan on Tuesday and an extensive MRI on Wednesday, our sweet little Sophie was diagnosed with an intrinsic brain stem glioma which appears to have developed in the pons area but has spread to the entire brain stem. To you , and me, this is medical jargon. What I did hear is "inoperable, fatal, worse case scenario, terminal, no cure, and average life expectancy of 12-14 months". You can do the research and read about the prognosis.
I know we have to be strong, but it is so hard. Marc told the doctor yesterday after hearing our options and a repeat of the prognosis and expected stage of events, "You know Doc, Sophie is the most beautiful little girl, and so damn smart, and she had so much to look forward to...why us"?
That's what I wonder...I know God has a plan much bigger than mine, but that just isn't enough to comfort me today, tomorrow and in the next weeks and months.
We are at Rainbow Babies and Children's Hospital in Cleveland...a good hospital, but we are still researching options to find out if there is hope; I guess there is always hope...that's what the oncologist said anyway...as long as you believe in that higher power.
I'll try to keep everybody updated somehow about where we go from here. Please say a prayer...if not for healing,for peace and comfort for our family.
XOXO
Emily
1 comment:
Hugs and Kisses to Sophie!
Andrea Segedi
February 22, 2007 at 01:41 PM EST
You are a Child of God Sophie Elizabeth...Angels danced the day you were born!
We love you baby...
Aaron, Andrea, Alayna and Annika
Reply:Andrea
Susan Miklaski
February 25, 2007 at 04:19 PM EST
Thanks for setting up this page, but thanks more for your prayers for Sophie.
Keep it up. If anyone knows how to pray fro miracles, it's you.
Frank and Suise
New message, Old news
Susan Miklaski
February 22, 2007 at 01:50 PM EST
I love you.
Grandma
In our prayers
Kimberly Walters
February 22, 2007 at 03:20 PM EST
Miracles happen. We're praying there'll be one for Sophie!
Love,
Kim, Chris, Grace, Reagan, and Kayla
Loving prayers
Pat Merz
February 22, 2007 at 03:30 PM EST
Dearest Sophie,
We love you sweetest angel & are praying for a miracle for you. We have
everyone we know praying for you too.
God bless you always & all ways.
OOOO XXXX
Pat & Mike Merz
Dear Sophie Elizabeth and Family
Maxine Yetter
February 22, 2007 at 03:40 PM EST
Please continue to believe in miracles and and know that your "extended"
family at Riverview High School has you all in thier thoughts and prayers.
Reply:Maxine
Susan Miklaski
February 25, 2007 at 04:31 PM EST
Thanks for the thoughts and prayers. I do believe i miracles -- one happened
to me.
Frank and Susie
Sophie Elizabeth and Family
Mike and Micki Prescott
February 22, 2007 at 04:03 PM EST
You are a shining light in your family. We will light a candle for you and your
family every week. Miracles do happen. Bless you Sophie. Our prayers are with
you all.
Mike and Micki Prescott
Reply:Mike and Micki
Susan Miklaski
February 25, 2007 at 04:29 PM EST
Thanks for the thoughts. May God see that shining light and answer our prayers.
Frank and Susie
Always in our hearts and prayers
Misty Karn
February 22, 2007 at 04:20 PM EST
Sophie, You are a beautiful little girl and if anyone deserves a miracle it
is you and your family. We will not stop praying until you get yours.
Love,
Misty, Doug, Elizabeth, Summer and Sienna
Sophie
Jennifer Slater
February 22, 2007 at 04:45 PM EST
We are praying for you every day! You are a beautiful little girl. Believe in
miracles!
Sean, Jen, Katie and Jake
Please know
Sam Erving
February 22, 2007 at 04:47 PM EST
Please know you are in our hearts and prayers.
sam and denise erving
Reply:Sam and Denise
Susan Miklaski
February 25, 2007 at 04:28 PM EST
Thanks so much. Kep on praying.
Frank and Susie
Dear Sophie and Family:
Trish Smith
February 22, 2007 at 05:26 PM EST
We are praying for a miracle. After last nights Ash Wednesday services, we have
a couple hundred people praying for you and your family. This will keep multiplying
through their contacts.
We love you.
Trish and Dave Smith
Prayers for Sophie
Patti Bozoian
February 22, 2007 at 05:40 PM EST
Marc and Emily,
You are in all our waking thoughts and in our prayers. We're wishing the very
best for you. We want to help you in any way we can, so don't hesitate to ask,
whatever it is.
We love you.
Aunt Patti and Uncle Rich
Reply:Patti and Rich
Susan Miklaski
February 25, 2007 at 04:27 PM EST
Thanks so much. Pray like there's no tomorrow.
Frank and Susie
Stay b
Carrie Holland
February 22, 2007 at 05:47 PM EST
Sophie- We're keeping you and your family in our thoughts and prayers. We have
hope in our hearts that a miracle will come your way.
Love,
Carrie, Jim, Olivia and Tessa Holland
Sophie, you are in my prayers
Joe Szejda
February 22, 2007 at 06:20 PM EST
I pray to God that He will show His mercy and kindness on you and make you well.
And I pray that He will give your Mom and Dad and Grandma and Grandpa strength
during these difficult times.
I love you dearly!
Uncle Joe
Reply:Joey
Susan Miklaski
February 25, 2007 at 04:26 PM EST
Thanks for your help, words, and prayers. Keep praying. Keep the faith.
Frank and Susie
Thoughts and prayers
Susan Pengelly
February 22, 2007 at 06:53 PM EST
Dear Marc and Emily,
We are thinking and praying for Sophie. Please know the love and support you
all have here in Trenton. Our arms are open and holding you and your family
at this time.
Love,
Mike and Susie Pengelly
Reply:Dear Mike and Susie
Susan Miklaski
February 25, 2007 at 04:25 PM EST
Thanks for the kind thoughts and offers to help. Just keep praying.
Frank and Susie
Our thoughts are with you
Lisa Mitchell
February 22, 2007 at 07:04 PM EST
Emily, Marc,Sophie and Sarah-
Our whole hearts ache for the pain you are going through. We will keep you in
our thoughts. So many people love you, so my hope is that this much positive
energy can change the course.
All our love
Jen Esparza
February 22, 2007 at 07:06 PM EST
Sophie-
The power of faith and prayer are amazing things. Everyone we know is praying
for your miracle. We hope to see and hug you very soon.
Love,
Lance, Jen, Maria, and Michael
God Bless Sophie,we are praying for all of you.
Maria Holaday
February 22, 2007 at 07:20 PM EST
We are praying for you to be b during this difficult time.I know you have
to feel asthough you are in a bad dream.Everyone in Cinti is praying for you
and you know the power of prayer."Two are better than one,because...if
one falls down, his friend can help him up.Ecclesiastes4:9,10.
Love,
Maria and Bruce
A Blessing for Sophie
Lori Simmons
February 22, 2007 at 07:51 PM EST
I know these words will not comfort you or take away your worry or heart's pain.
But know miracles happen - I have seen them happen. We are thinking of you and
your Sophie.
The Simmons' Family
Thank You!
Leslie Farmer
February 22, 2007 at 07:55 PM EST
Sophie-
Thank you for the wonderful tea party today. I had so much fun. I loved the
pineapple tea and even the green bean tea. The cookies were good too. I miss
you and can't wait to see you again. You always tell us how b you are,
now you need to show us.
I love you.
Aunt Leslie
Praying for all of you!
Michele Hamann
February 22, 2007 at 08:01 PM EST
Marc, Emily, Sophie & Sarah,
We are praying for a miracle for beautiful Sophie. She is so loved and the power
of prayer is so b. Our family will continue to pray for you Sophie. Emily
and Marc, we will pray for strength for you during this incredibly difficult
time. You are such loving parents and great people and we will do anything we
can for you. In Him, Steve and Michele Hamann
Sophie and mommy and daddy and Auntie Sarah
Katherine Witt
February 22, 2007 at 08:49 PM EST
There are miracles, this is such a very difficult time, know that prayers are
being said from coast to coast for you dear little one. Thank You for allowing
us all to open our prayers and hearts to the entire family and friends. Katherine
and Corbin Witt in South Dakota.
We are praying for you
Emily Gonyea
February 22, 2007 at 08:50 PM EST
Dear Marc, Emily, Sophie, and Sarah,
Ever since we heard the news, you have been a constant in our prayers. We are
so sorry that you are going through this. We hope the thoughts and prayers from
loved ones can give you the strength you will need. There are many people here
in Trenton that will be sending their power and positive energy your way.
Love,
Emily, Marc, Andrew, and Claire.
A precious girl
Lindsay Hoag
February 22, 2007 at 08:57 PM EST
I may not see you all that often but I always think of you when holidays are
around and wondering how your childhood life is going. I want you to know that
miracles can always happen and to keep your chin up! The Hoag family loves you
and our thoughts are with you during these tough times. :)
Sweet Sophie
Geoff Stover
February 22, 2007 at 09:43 PM EST
Marc, Emily, Sophie, and Sarah-
We are praying for comfort for your family and healing for Sophie. We believe
that her beautiful spirit can be larger than all of this. You are all in our
constant thoughts.
Love,
Geoff and Emily Stover
May strengh and courage be yours
Karrie Yancey
February 22, 2007 at 10:08 PM EST
When God said "follow me" He never said the road would be easy or
smooth... but He did promise that we would never walk it alone, that He would
always be with us, even carry us when necessary. "For I can do anything
with the help of Christ the Lord who strengthens me" Phillippians 4:13
Lean to his strengh. I pray for you and yours.
A friend of a friend
In Our Thoughts And Prayers
Enice Harris
February 22, 2007 at 10:09 PM EST
Marc, Emily, Sophie and Sarah, I cannot begin to tell you how heart broken we
were to hear the news. My family and I will keep you in our thoughts and prayers.
We want to ensure you know that the Lord's presence is with us and may he keep
your family in his loving arms.
To Emily
A L
February 22, 2007 at 10:15 PM EST
I hope your daughter Sophie will be okay. I still remember your flying car.
Love
Deric LeFevre
Beautiful Sophie
Tiffany Hall
February 22, 2007 at 10:16 PM EST
Marc, Emily, Sophie, and Sarah
There are so many peolpe that are praying for not only Sophie, but your entire
family. Sophie is such a beautiful little girl, with a beautiful spirit and
personality. She has touched so many peolpe in ways that you may not be aware
of.
Be b, God is looking after you all:)
Beautiful little Sophie
A L
February 22, 2007 at 10:24 PM EST
Our prayers for a miracle are continuous. Jesus loves you and all of your family
very much. May God grant you strength, courage and peace.
Love
Linda & Bill LeFevre
CHRPette
Janice Wiles
February 22, 2007 at 11:30 PM EST
Dearest Sophie and family, SOOOOO many people at IHM are praying for all of
you, our CHRP team of course, but Graceful Women, the entire IHM school staff,
the Franciscan Brothers and the nuns at St. Ann's and everyone we know, will
continue to pray for you. We all fell in love with Sophie as she became our
little CHRP sister. May God give all of you His strength.
If there is anything I can do...know that I will.
love
Janice
Precious Sophie
Donna Monas
February 22, 2007 at 11:53 PM EST
Dear Emily, Marc, Sophie and Sarah,
Our love and prayers surround you and your entire family. We do believe in miracles.
Keep the faith. Know that you will be in our daily thoughts and prayers. Blessings
to all of you.
Love,
Donna and Max Monas
Reply:Dear Max and Donna
Susan Miklaski
February 25, 2007 at 04:23 PM EST
Thanks for the thoughts and concern. Please continue to pray for our dear Sophis.
Frank and Susie
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