Off to St. Jude's

We are packed and ready to go. Now we anxiously await the phone call which tells us what flight we will be on. Baby Sarah will be staying here at home with Aunt Sarah and Uncle Matt: at least for the first week. Then we are hoping to be back together as a family in Memphis for the following 6 weeks. I will post our "new" address tomorrow since so may people have asked for it.

We finally talked with Sophie about where we are going, and she was not too excited. We decided we won't use the word "hospital" anymore; it's just St. Jude's. Little Maria came over tonight and told Sophie that she has friends at St. Jude's, so hopefully Sophie will see that it won't be such a scary place.

We explained in the simplest terms we could, what is going on inside her body. Although she hasn't asked many questions, we knew that she knew more than we had officially told her. We thought we should get things out in the open. She was pretty quiet, taking it all in, in her usual Sophie style. I'm sure the questions will come soon.

Sophie has been pretty amazing as far as her symptoms go. Her coordination is much better, but her smile is still gone and although she is very tired, she is having a rough time sleeping. The steroid makes her quite irritable, and she still wakes frequently throughout the night, sometimes wetting the bed. Try convincing a girl who has been potty trained for so long to wear a pull up - not easy! We were able to take the bandages off the mediport spots and she was able to get in the tub for the first time in days, and she said laying down on her tummy in the water made her tummy feel better, which was a positive thing.

We appreciate all the kind words, prayers and gestures. Church was a little tough this morning, hearing Sophie's name read with the petitions, but a good feeling to. We leave this in God's hands. Keep the prayers coming, we are hoping for a miracle.