Just a quick request for more prayers. It's hard for us to tell if Sophie is doing worse like it seems, or if her body is adjusting to being home and going non stop.
Her limp and stiff leg are more pronounced, as is the weakness in her right arm and hand. She has gone back to mostly crawling up the steps, and she wasn't able to smile as big this afternoon. She is also having trouble with her balance.
We went from giving her the steroid every other day, to every 36 hours, now every day. We are hoping that she is just tired and these symptoms aren't indications of the tumor.
Please say an extra prayer for her today, and all this week until we head back to St. Jude when we will need even more prayers when she gets the MRI. We are anxious and nervous.
21 comments:
god bless you all. and i pray every night that siphie will be able pull through this horrible tragity.
god bless
Oh sweetheart, my heart just breaks for you guys. We are continually praying for all of you, as I know people all around the world are. Your faith is surely being tested. Please know that you never leave our minds.
We're back in the states on Sunday so we'll talk to you then.
We love you more than you can imagine. So much love, Grandma Turner & Poppy.
Emily, Marc, Sophie, and Sarah
We think about all of you many times everyday. Know that so many people care and are praying for you all of time. I hope the time until your check up at St. Jude flies by so that you can get some peace of mind from the doctors. Sophie has to be ok… there can not be any other option. And we hope you are feeling well to Emily.
All our Hugs and Love
The Simmons’ Family
Dear Emily and Marc,
Our prayers continue to come your way. Please know that we will be at your side always. Whenever and how long you need us, whatever you want, and however we can help, we will. We love you.
Still thinking of, talking about, hoping and praying for your precious baby girl every day!
All our love,
Paula and family
Oh Marc and Emily, I just read your post and I can't see here what I'm doing because of my tears. Everything I think of to say sounds so.....there's just no words. I'm praying for ALL of you and especially for your PERFECT little Sophie. PLEASE know that you are not alone in this. We are ALL with you. I'm praying for that MIRACLE,and for your strength and for your unity and for the deep love that your wonderful family feels for each other. NEVER ending prayers and thoughts and love, your aunt Lynne
Oh Emily, my heart goes out to you, Marc, Sophie & Sarah for everything you are going through. I'm glad you made it home safely from all your travels and I hope your root canal went well on Thursday (as if you aren't dealing with enough already!). I'll be saying many prayers for Sophie (and all of you) each and every day.
Love Tracy & Family
I will continue to pray for your beautiful Sophie. Don't ever give up hope. God Bless Your Family!
Jean, Avon Lake
I will continue my prayers for Sophie. I am sorry things are not looking great right now. God Bless you all.
HI! i am a college student in Iowa and i just wanted to let you know that i am praying for you too.
God bless you,
Alicia
Saying praying for Sophie today..and will remember her in prayers often this week.
Liza
We can't stop thinking about you or praying for you. I doubt that there is a second of any 24 hour period when someone on this planet is NOT praying for you. Try not to dwell on Thursday, or the next week, or the next month or next year. Enjoy your beautitful family today and in EVERY moment. Do something fun. There is beauty in every single day and sometimes you just have to go out and search for it. We love you all so very, very much.
The Lord is shining down on Avon Lake today! We pray that His light may bring Sophie's miracle down too!
Blessings,
Kim, Chris, Grace, Rea & Kayla
I am a friend of your Uncle Joes, & I have been following this all since it began. My heart & prayers are with you all constantly. God Bless your precious Angel Sophie, and the rest of you as well.
Cindy
I am praying every day for a miracle for Sophie. She is such a little angel! At mass this weekend, Sophie, Maria and all the children suffering from this terrible disease were foremost in my thoughts and prayers as they are always.
Marlene Fairview Park
Sophie and everybody in your family are in our prayers.
If she starts asking to eat grits, that's because folks in the singles group at Christ The King Cathedral in Atlanta are lifting you up in their prayers.
Hi Emily
I just wanted to let you know that we are praying for you all. Sophie is in all of our thoughts and prayers. I know that her MRI is probaly coming up. Word of advice make sure you have someone with you. Although I believe that the outcome will be awesome, it helps comfort you. If you need to talk you can cal anytime (251) 661-0262. God Bless You and Your Family-
email is cwikrefunds@bellsouth.net
I am from Washington DC and was passing through the Detroit area where I saw your flier and information about Sophie. I just made a donation. I will pray for your beautiful little girl.
Dear Emily and Marc,
I came across your website several days ago and it just broke my heart. I too am a mother (to 3 little girls) and I just cried reading Sophie's story. I will be praying so so very hard for her and you all as well. God heals people all the time and I will pray this for Sophie. She's just beautiful and radiant. God bless you all as you go through this together. Best wishes.
Molly
wow. this must be tough. i kinda know what it is like. i just lost my grandma to cancer in march. i really love the webstie and i want you all to know that me and my friends are planning to go the walk at our school saturday.i also have a smiles for sophie bracelet. we have a big poater board in our cafateria that is all about sophie and her stpry. i hope you can make it through this. and we are all praying for you at Immaculate Heart of Mary school and in our church.
I am a retired homecare and hospice nurse and I send you my love and prayers. I know this is a difficult, challenging and heart breaking time for your entire family.
Sophie is one of the St. Jude angels....so many children dealing with so many struggles....daily, unending, painful. And they go through this with such grace.
St. Jude is definitely the place to be.....best care for your little girl, best support for you.
The fund raisers coming up and the help that you have already received are testament to the love that surrounds you all the time.
Take heart in knowing that you are loved and supported and that YOU WILL GET THROUGH THIS ORDEAL.
I was surprised to hear of the need to cover medical expenses.....as I had been led to believe over the years that all care from St. Jude's Children's Hospital was FREE. I hope that I was not wrong in this belief, as I have sent them money for years.
As for getting Sophie into Hospice "so early".....it is NEVER TOO EARLY for Hospice care at home......too many people see it as some kind of death sentence...and it is not. Many will get better and some will survive for years and live "normal lives". The services are so excellent and the people who go into hospice work are very special....and loving, caring, giving and have so much to teach you. So, just take it one day at a time.
God be with the entire family, and may you find peace and strength.
Love to you,
Penny Maroldo, RN, BSN, SW (A NJ friend of cousin Eddie Z)
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